9780691027838-0691027838-In the Shadow of Illness

In the Shadow of Illness

ISBN-13: 9780691027838
ISBN-10: 0691027838
Edition: 1
Author: Bluebond-Langner, Myra
Publication date: 1996
Publisher: Princeton University Press
Format: Hardcover 328 pages
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Book details

ISBN-13: 9780691027838
ISBN-10: 0691027838
Edition: 1
Author: Bluebond-Langner, Myra
Publication date: 1996
Publisher: Princeton University Press
Format: Hardcover 328 pages

Summary

Acknowledged authors Bluebond-Langner, Myra wrote In the Shadow of Illness comprising 328 pages back in 1996. Textbook and eTextbook are published under ISBN 0691027838 and 9780691027838. Since then In the Shadow of Illness textbook was available to sell back to BooksRun online for the top buyback price or rent at the marketplace.

Description

What is it like to live with a child who has a chronic, life-threatening disease? What impact does the illness have on well siblings in the family? Myra Bluebond-Langner suggests that understanding the impact of the illness lies not in identifying deficiencies in the lives of those affected, but in appreciating how family members carry on with their lives in the face of the disease's intrusion.



The Private Worlds of Dying Children, Bluebond-Langner's previous book, now considered a classic in the field, explored the world of terminally ill children. In her new book, she turns her attention to the lives of those who live in the shadow of chronic illness: the parents and well siblings of children who have cystic fibrosis. Through a series of narrative portraits, she draws us into the daily lives of nine families of children at different points in the natural history of the illness--from diagnosis through the terminal phase. In these portraits, as family members talk about their experiences in their own words, we see how parents, well siblings, and the ill children themselves struggle, in different ways, to contain the intrusion of the disease into their lives.


Bluebond-Langner looks at how parents adjust their priorities and their idea of what constitutes a normal life, how they try to balance the needs of other family members while caring for the ill child, and how they see the future. This context helps us understand how well siblings view the illness and how they relate to their ill sibling and parents. Since the issues raised are not unique to cystic fibrosis but are common to other chronic and life-threatening illnesses, this book will be of interest to all who study, care for, or live with the seriously ill.

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